New Zealand Rheumatic Fever FHIR Implementation Guide
0.4.7 - draft

New Zealand Rheumatic Fever FHIR Implementation Guide - Local Development build (v0.4.7) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: PatientWhanauGoalsPreferencesQuestionnaireResponse - JSON Representation

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{
  "resourceType" : "QuestionnaireResponse",
  "meta" : {
    "versionId" : "2",
    "lastUpdated" : "2024-08-07T08:31:00Z",
    "profile" : [
      🔗 "http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"
    ],
    "tag" : [
      {
        "system" : "https://fhir-ig.digital.health.nz/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem",
        "code" : "rf-nz",
        "display" : "rheumatic fever"
      }
    ]
  },
  "basedOn" : [
    {
      🔗 "reference" : "CarePlan/RegisteredPatient"
    }
  ],
  "questionnaire" : "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0",
  "status" : "completed",
  "subject" : {
    "type" : "Patient",
    "identifier" : {
      "use" : "official",
      "system" : "https://standards.digital.health.nz/ns/nhi-id",
      "value" : "ZKC7284"
    },
    "display" : "Sage Westbrook"
  },
  "authored" : "2023-06-19T03:08:00.504Z",
  "author" : {
    "type" : "Organization",
    "identifier" : {
      "use" : "official",
      "system" : "https://standards.digital.health.nz/ns/hpi-organisation-id",
      "value" : "G0M086-B"
    },
    "display" : "Te Tai Tokerau Rheumatic Fever Secondary Prevention Service"
  },
  "item" : [
    {
      "linkId" : "ImportantToMe",
      "text" : "What things that are important to me and my family that support my health and wellbeing? (enter text)",
      "answer" : [
        {
          "valueString" : "I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire."
        }
      ]
    },
    {
      "linkId" : "WhanauInvolvement",
      "text" : "How would I like my whanau and support persons to be involved? (enter text)",
      "answer" : [
        {
          "valueString" : "I want my sisters to be with me at the injection appointments to support and distract me."
        }
      ]
    },
    {
      "linkId" : "BestWayToCommunicate",
      "text" : "The best way to communicate with me is…? (choose one)",
      "answer" : [
        {
          "valueString" : "text message"
        }
      ]
    },
    {
      "linkId" : "AppointmentsContact",
      "text" : "I know who to contact about my appointments? (choose one)",
      "answer" : [
        {
          "valueBoolean" : true
        }
      ]
    },
    {
      "linkId" : "PreferredAppointmentsLocation",
      "text" : "What location do I prefer to receive injected antibiotics at? (choose one)",
      "answer" : [
        {
          "valueString" : "Home"
        }
      ]
    },
    {
      "linkId" : "InjectionLocationDetail",
      "text" : "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)",
      "answer" : [
        {
          "valueString" : "We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!"
        }
      ]
    },
    {
      "linkId" : "ImportantDuringInjectionVisits",
      "text" : "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)",
      "answer" : [
        {
          "valueString" : "I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections"
        }
      ]
    },
    {
      "linkId" : "InjectionVisitsNoNos",
      "text" : "What things don't work well for me during my injection visits? (enter text)",
      "answer" : [
        {
          "valueString" : "I prefer not to know anything about the dose of medication in my injections.\nAlso I don't like having the injection in the same part of my thigh on each appointment.  It would be good if the nurse can mix it up a bit."
        }
      ]
    },
    {
      "linkId" : "MakingInjectionsComfortable",
      "text" : "What things do I like to have with my injections to make them more comfortable? (multiple choice)",
      "answer" : [
        {
          "valueString" : "Lignocaine"
        },
        {
          "valueString" : "Ice pack"
        },
        {
          "valueString" : "Numbing spray"
        },
        {
          "valueString" : "Distraction"
        }
      ]
    },
    {
      "linkId" : "InjectionOtherComfort",
      "text" : "What other things make my injections more comfortable? (enter text)",
      "answer" : [
        {
          "valueString" : "Ice cream always works well!"
        }
      ]
    },
    {
      "linkId" : "MedsPreferredSupplyMethod",
      "text" : "I would prefer to get my oral antibiotic medicines from? (choose one)",
      "answer" : [
        {
          "valueString" : "Other"
        }
      ]
    },
    {
      "linkId" : "MedsSupplyOtherDetail",
      "text" : "If other, enter details",
      "answer" : [
        {
          "valueString" : "Please can you supply my medications in two-month packs?"
        }
      ]
    },
    {
      "linkId" : "EasierToGetToAppointments",
      "text" : "What things make it easier for me to get to hospital appointments? (multiple choice)",
      "answer" : [
        {
          "valueString" : "Morning appointments"
        }
      ]
    },
    {
      "linkId" : "HospitalAppointmentsImportant",
      "text" : "More detail about the things that are important to me about hospital appointments (enter text)",
      "answer" : [
        {
          "valueString" : "I would like my hospital injections in a room with a view of the mountains."
        }
      ]
    },
    {
      "linkId" : "HospitalAppointmentsNoNos",
      "text" : "Things that don't work well for me about hospital appointments (enter text)",
      "answer" : [
        {
          "valueString" : "I prefer it if there are not heaps of trainee medics watching me get my injections."
        }
      ]
    },
    {
      "linkId" : "SupportGettingToHospitalAppointments",
      "text" : "Do I need support getting to and from hospital appointment? (choose one)",
      "answer" : [
        {
          "valueString" : "No"
        }
      ]
    },
    {
      "linkId" : "HospitalAppointmentsTransportSupport",
      "text" : "Which transport support option do I need? (choose one)",
      "answer" : [
        {
          "valueString" : "Other"
        }
      ]
    },
    {
      "linkId" : "HospitalAppointmentsTransportOtherDetail",
      "text" : "What other details are there about getting to hospital appointments? (enter text)",
      "answer" : [
        {
          "valueString" : "Please can I have a reserved park space to park Dad's '73 Hilux?  This will help me get to my appointments on time."
        }
      ]
    }
  ]
}