New Zealand Rheumatic Fever FHIR Implementation Guide
1.0.0 - draft

New Zealand Rheumatic Fever FHIR Implementation Guide - Local Development build (v1.0.0) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: Patient & whanau goals and preferences questionnaire - TTL Representation

Draft as of 2023-10-16

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@prefix fhir: <http://hl7.org/fhir/> .
@prefix owl: <http://www.w3.org/2002/07/owl#> .
@prefix rdfs: <http://www.w3.org/2000/01/rdf-schema#> .
@prefix xsd: <http://www.w3.org/2001/XMLSchema#> .

# - resource -------------------------------------------------------------------

 a fhir:Questionnaire ;
  fhir:nodeRole fhir:treeRoot ;
  fhir:id [ fhir:v "PatientWhanauGoalsPreferencesQuestionnaire"] ; # 
  fhir:url [ fhir:v "https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire"^^xsd:anyURI] ; # 
  fhir:identifier ( [
fhir:use [ fhir:v "official" ] ;
fhir:value [ fhir:v "PatientWhanauGoalsPreferencesQuestionnaire" ] ;
fhir:period [
fhir:start [ fhir:v "2023-10-16"^^xsd:date ]     ]
  ] ) ; # 
  fhir:version [ fhir:v "1.0.0"] ; # 
  fhir:name [ fhir:v "PatientWhanauGoalsPreferencesQuestionnaire"] ; # 
  fhir:title [ fhir:v "Patient & whanau goals and preferences questionnaire"] ; # 
  fhir:status [ fhir:v "draft"] ; # 
  fhir:experimental [ fhir:v "false"^^xsd:boolean] ; # 
  fhir:subjectType ( [ fhir:v "Patient"] ) ; # 
  fhir:date [ fhir:v "2023-10-16"^^xsd:date] ; # 
  fhir:publisher [ fhir:v "Te Whatu Ora"] ; # 
  fhir:contact ( [
fhir:name [ fhir:v "Te Whatu Ora" ] ;
    ( fhir:telecom [
fhir:system [ fhir:v "url" ] ;
fhir:value [ fhir:v "https://www.tewhatuora.govt.nz/" ]     ] [
fhir:system [ fhir:v "email" ] ;
fhir:value [ fhir:v "integration@tewhatuora.govt.nz" ]     ] )
  ] [
fhir:name [ fhir:v "HNZ Integration Team" ] ;
    ( fhir:telecom [
fhir:system [ fhir:v "email" ] ;
fhir:value [ fhir:v "integration@tewhatuora.govt.nz" ] ;
fhir:use [ fhir:v "work" ]     ] )
  ] ) ; # 
  fhir:description [ fhir:v "Gathers patient and whanau preferences and goals for rheumatic fever care"] ; # 
  fhir:purpose [ fhir:v "Gathers patient and whanau preferences and goals for rheumatic fever care"] ; # 
  fhir:item ( [
fhir:linkId [ fhir:v "page1" ] ;
fhir:prefix [ fhir:v "page1" ] ;
fhir:text [ fhir:v "Please complete this questionnaire to record goals and preferences of a patient or their whanau in relation to rheumatic fever prevention treatment." ] ;
fhir:type [ fhir:v "display" ]
  ] [
fhir:linkId [ fhir:v "ImportantToMe" ] ;
fhir:prefix [ fhir:v "1)" ] ;
fhir:text [ fhir:v "What things that are important to me and my family that support my health and wellbeing? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "WhanauInvolvement" ] ;
fhir:prefix [ fhir:v "2)" ] ;
fhir:text [ fhir:v "How would I like my whanau and support persons to be involved? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "BestWayToCommunicate" ] ;
fhir:prefix [ fhir:v "3)" ] ;
fhir:text [ fhir:v "The best way to communicate with me is…? (choose one)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "phone call" ]     ] [
fhir:value [ fhir:v "text message" ]     ] [
fhir:value [ fhir:v "email" ]     ] )
  ] [
fhir:linkId [ fhir:v "AppointmentsContact" ] ;
fhir:prefix [ fhir:v "4)" ] ;
fhir:text [ fhir:v "I know who to contact about my appointments? (choose one)" ] ;
fhir:type [ fhir:v "boolean" ] ;
fhir:required [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:item [
      ( fhir:extension [
fhir:url [ fhir:v "http://hl7.org/fhir/StructureDefinition/questionnaire-itemControl"^^xsd:anyURI ] ;
fhir:value [
a fhir:CodeableConcept ;
          ( fhir:coding [
fhir:system [ fhir:v "http://hl7.org/fhir/questionnaire-item-control"^^xsd:anyURI ] ;
fhir:code [ fhir:v "help" ] ;
fhir:display [ fhir:v "Help-Button" ]           ] ) ;
fhir:text [ fhir:v "Help-Button" ]         ]       ] ) ;
fhir:linkId [ fhir:v "AppointmentsContactHelp" ] ;
fhir:text [ fhir:v "I understand who I should phone or text if I need to change my appointments, OR if I am going to be away, OR if I have questions." ] ;
fhir:type [ fhir:v "display" ]     ] )
  ] [
fhir:linkId [ fhir:v "PreferredAppointmentsLocation" ] ;
fhir:prefix [ fhir:v "5)" ] ;
fhir:text [ fhir:v "What location do I prefer to receive injected antibiotics at? (choose one)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "School" ]     ] [
fhir:value [ fhir:v "Home" ]     ] [
fhir:value [ fhir:v "Work" ]     ] [
fhir:value [ fhir:v "Clinic" ]     ] [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "InjectionLocationDetail" ] ;
fhir:prefix [ fhir:v "6)" ] ;
fhir:text [ fhir:v "More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "ImportantDuringInjectionVisits" ] ;
fhir:prefix [ fhir:v "7)" ] ;
fhir:text [ fhir:v "What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "InjectionVisitsNoNos" ] ;
fhir:prefix [ fhir:v "8)" ] ;
fhir:text [ fhir:v "What things don't work well for me during my injection visits? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "MakingInjectionsComfortable" ] ;
fhir:prefix [ fhir:v "9)" ] ;
fhir:text [ fhir:v "What things do I like to have with my injections to make them more comfortable? (multiple choice)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "true"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "Lignocaine" ]     ] [
fhir:value [ fhir:v "Ice pack" ]     ] [
fhir:value [ fhir:v "Buzzy bee" ]     ] [
fhir:value [ fhir:v "Numbing cream (Emla)" ]     ] [
fhir:value [ fhir:v "Numbing spray" ]     ] [
fhir:value [ fhir:v "Distraction" ]     ] [
fhir:value [ fhir:v "Very slow injection" ]     ] )
  ] [
fhir:linkId [ fhir:v "InjectionOtherComfort" ] ;
fhir:prefix [ fhir:v "10)" ] ;
fhir:text [ fhir:v "What other things make my injections more comfortable? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "MedsPreferredSupplyMethod" ] ;
fhir:prefix [ fhir:v "11)" ] ;
fhir:text [ fhir:v "I would prefer to get my oral antibiotic medicines from? (choose one)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "GP prescription" ]     ] [
fhir:value [ fhir:v "Monthly visit from a nurse" ]     ] [
fhir:value [ fhir:v "3 monthly visit from a nurse" ]     ] [
fhir:value [ fhir:v "Pick-up from a pharmacy" ]     ] [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "MedsSupplyOtherDetail" ] ;
fhir:prefix [ fhir:v "11.1)" ] ;
fhir:text [ fhir:v "If other, enter details" ] ;
fhir:type [ fhir:v "text" ] ;
    ( fhir:enableWhen [
fhir:question [ fhir:v "MedsPreferredSupplyMethod" ] ;
fhir:operator [ fhir:v "=" ] ;
fhir:answer [ fhir:v "Other" ]     ] ) ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "EasierToGetToAppointments" ] ;
fhir:prefix [ fhir:v "12)" ] ;
fhir:text [ fhir:v "What things make it easier for me to get to hospital appointments? (multiple choice)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "true"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "Support with transport" ]     ] [
fhir:value [ fhir:v "Morning appointments" ]     ] [
fhir:value [ fhir:v "Afternoon appointments" ]     ] [
fhir:value [ fhir:v "Choice of clinic days" ]     ] [
fhir:value [ fhir:v "Cultural support" ]     ] [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsImportant" ] ;
fhir:prefix [ fhir:v "13)" ] ;
fhir:text [ fhir:v "More detail about the things that are important to me about hospital appointments (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsNoNos" ] ;
fhir:prefix [ fhir:v "14)" ] ;
fhir:text [ fhir:v "Things that don't work well for me about hospital appointments (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] [
fhir:linkId [ fhir:v "SupportGettingToHospitalAppointments" ] ;
fhir:prefix [ fhir:v "15)" ] ;
fhir:text [ fhir:v "Do I need support getting to and from hospital appointment? (choose one)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "Yes - always" ]     ] [
fhir:value [ fhir:v "Yes - sometimes, please check each time" ]     ] [
fhir:value [ fhir:v "No" ]     ] [
fhir:value [ fhir:v "Not sure" ]     ] [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsTransportSupport" ] ;
fhir:prefix [ fhir:v "question 16" ] ;
fhir:text [ fhir:v "Which transport support option do I need? (choose one)" ] ;
fhir:type [ fhir:v "choice" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ] ;
fhir:repeats [ fhir:v "false"^^xsd:boolean ] ;
    ( fhir:answerOption [
fhir:value [ fhir:v "Taxi vouchers" ]     ] [
fhir:value [ fhir:v "Top up on public transport card" ]     ] [
fhir:value [ fhir:v "Hospital to provide transport" ]     ] [
fhir:value [ fhir:v "Other" ]     ] )
  ] [
fhir:linkId [ fhir:v "HospitalAppointmentsTransportOtherDetail" ] ;
fhir:prefix [ fhir:v "question 17" ] ;
fhir:text [ fhir:v "What other details are there about getting to hospital appointments? (enter text)" ] ;
fhir:type [ fhir:v "text" ] ;
fhir:required [ fhir:v "true"^^xsd:boolean ]
  ] ) . #