New Zealand Rheumatic Fever FHIR Implementation Guide
0.4.8 - draft

New Zealand Rheumatic Fever FHIR Implementation Guide - Local Development build (v0.4.8) built by the FHIR (HL7® FHIR® Standard) Build Tools. See the Directory of published versions

: PatientWhanauGoalsPreferencesQuestionnaireResponse - XML Representation

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<QuestionnaireResponse xmlns="http://hl7.org/fhir">
  <meta>
    <versionId value="2"/>
    <lastUpdated value="2024-08-07T08:31:00Z"/>
    <profile
             value="http://hl7.org/fhir/StructureDefinition/QuestionnaireResponse"/>
    <tag>
      <system
              value="https://fhir-ig.digital.health.nz/rheumatic-fever/CodeSystem/nz-rheumaticfever-codesystem"/>
      <code value="rf-nz"/>
      <display value="rheumatic fever"/>
    </tag>
  </meta>
  <basedOn>🔗 
    <reference value="CarePlan/RegisteredPatient"/>
  </basedOn>
  <questionnaire
                 value="https://fhir-ig.digital.health.nz/rheumatic-fever/Questionnaire/PatientWhanauGoalsPreferencesQuestionnaire|1.0.0"/>
  <status value="completed"/>
  <subject>
    <type value="Patient"/>
    <identifier>
      <use value="official"/>
      <system value="https://standards.digital.health.nz/ns/nhi-id"/>
      <value value="ZKC7284"/>
    </identifier>
    <display value="Sage Westbrook"/>
  </subject>
  <authored value="2023-06-19T03:08:00.504Z"/>
  <author>
    <type value="Organization"/>
    <identifier>
      <use value="official"/>
      <system
              value="https://standards.digital.health.nz/ns/hpi-organisation-id"/>
      <value value="G0M086-B"/>
    </identifier>
    <display
             value="Te Tai Tokerau Rheumatic Fever Secondary Prevention Service"/>
  </author>
  <item>
    <linkId value="ImportantToMe"/>
    <text
          value="What things that are important to me and my family that support my health and wellbeing? (enter text)"/>
    <answer>
      <valueString
                   value="I want to avoid getting rheumatic heart disease so I can take over from Dad running our adventure tourism company, when he wants to retire."/>
    </answer>
  </item>
  <item>
    <linkId value="WhanauInvolvement"/>
    <text
          value="How would I like my whanau and support persons to be involved? (enter text)"/>
    <answer>
      <valueString
                   value="I want my sisters to be with me at the injection appointments to support and distract me."/>
    </answer>
  </item>
  <item>
    <linkId value="BestWayToCommunicate"/>
    <text value="The best way to communicate with me is…? (choose one)"/>
    <answer>
      <valueString value="text message"/>
    </answer>
  </item>
  <item>
    <linkId value="AppointmentsContact"/>
    <text value="I know who to contact about my appointments? (choose one)"/>
    <answer>
      <valueBoolean value="true"/>
    </answer>
  </item>
  <item>
    <linkId value="PreferredAppointmentsLocation"/>
    <text
          value="What location do I prefer to receive injected antibiotics at? (choose one)"/>
    <answer>
      <valueString value="Home"/>
    </answer>
  </item>
  <item>
    <linkId value="InjectionLocationDetail"/>
    <text
          value="More detail about this location (eg. at school during term time, but at home with Dad if out of term time)? (enter text)"/>
    <answer>
      <valueString
                   value="We have an emu on our property which can be quite aggressive on Wednesdays and Thursdays in summer and doesn't like Audis so watch out for that!"/>
    </answer>
  </item>
  <item>
    <linkId value="ImportantDuringInjectionVisits"/>
    <text
          value="What things that are important to me during my injection visits eg. karakia, kaiawhina support? (enter text)"/>
    <answer>
      <valueString
                   value="I appreciate having chats with the district nurse at my appointments and I find this helps distract me from the injections"/>
    </answer>
  </item>
  <item>
    <linkId value="InjectionVisitsNoNos"/>
    <text
          value="What things don't work well for me during my injection visits? (enter text)"/>
    <answer>
      <valueString
                   value="I prefer not to know anything about the dose of medication in my injections.
Also I don't like having the injection in the same part of my thigh on each appointment.  It would be good if the nurse can mix it up a bit."/>
    </answer>
  </item>
  <item>
    <linkId value="MakingInjectionsComfortable"/>
    <text
          value="What things do I like to have with my injections to make them more comfortable? (multiple choice)"/>
    <answer>
      <valueString value="Lignocaine"/>
    </answer>
    <answer>
      <valueString value="Ice pack"/>
    </answer>
    <answer>
      <valueString value="Numbing spray"/>
    </answer>
    <answer>
      <valueString value="Distraction"/>
    </answer>
  </item>
  <item>
    <linkId value="InjectionOtherComfort"/>
    <text
          value="What other things make my injections more comfortable? (enter text)"/>
    <answer>
      <valueString value="Ice cream always works well!"/>
    </answer>
  </item>
  <item>
    <linkId value="MedsPreferredSupplyMethod"/>
    <text
          value="I would prefer to get my oral antibiotic medicines from? (choose one)"/>
    <answer>
      <valueString value="Other"/>
    </answer>
  </item>
  <item>
    <linkId value="MedsSupplyOtherDetail"/>
    <text value="If other, enter details"/>
    <answer>
      <valueString
                   value="Please can you supply my medications in two-month packs?"/>
    </answer>
  </item>
  <item>
    <linkId value="EasierToGetToAppointments"/>
    <text
          value="What things make it easier for me to get to hospital appointments? (multiple choice)"/>
    <answer>
      <valueString value="Morning appointments"/>
    </answer>
  </item>
  <item>
    <linkId value="HospitalAppointmentsImportant"/>
    <text
          value="More detail about the things that are important to me about hospital appointments (enter text)"/>
    <answer>
      <valueString
                   value="I would like my hospital injections in a room with a view of the mountains."/>
    </answer>
  </item>
  <item>
    <linkId value="HospitalAppointmentsNoNos"/>
    <text
          value="Things that don't work well for me about hospital appointments (enter text)"/>
    <answer>
      <valueString
                   value="I prefer it if there are not heaps of trainee medics watching me get my injections."/>
    </answer>
  </item>
  <item>
    <linkId value="SupportGettingToHospitalAppointments"/>
    <text
          value="Do I need support getting to and from hospital appointment? (choose one)"/>
    <answer>
      <valueString value="No"/>
    </answer>
  </item>
  <item>
    <linkId value="HospitalAppointmentsTransportSupport"/>
    <text value="Which transport support option do I need? (choose one)"/>
    <answer>
      <valueString value="Other"/>
    </answer>
  </item>
  <item>
    <linkId value="HospitalAppointmentsTransportOtherDetail"/>
    <text
          value="What other details are there about getting to hospital appointments? (enter text)"/>
    <answer>
      <valueString
                   value="Please can I have a reserved park space to park Dad's '73 Hilux?  This will help me get to my appointments on time."/>
    </answer>
  </item>
</QuestionnaireResponse>